Dental treatment and quality of life in rare syndromes
Quality of life in oligodontia with or without ectodermal dysplasia
Oligodontia (congenital lack of six or more teeth, except wisdom teeth) is a frequent finding in different forms of ectodermal dyplasias (EDs).
EDs include pathological changes in ectodermal tissues like hair, skin, nails, and sweat glands. Permanent teeth may be missing or have a pointed shape, which can affect appearance and oral function.
The goal of the study is to examine how oligodontia/ED and related oral treatment affect oral and mental health and quality of life.
All patients with oligodonti/ED registered at the TAKO-Centre were invited to participate in a survey, and a selection was then requested to participate in an extended interview and clinical examination focusing on oral findings, treatment/management needs, and quality of life
Janicke Liaaen Jensen, professor, Faculty of Dentistry, UiO
Solfrid Saltnes, PhD student, Faculty of Dentistry, UiO
Amy Geirdal, professor, Oslo and Akershus College of applied sciences, Oslo
Hilde Nordgarden, Head of Department, TAKO-centre, Oslo
Rønnaug Sæves, consultant, TAKO-centre, Oslo