Dental treatment and quality of life in rare syndromes

Quality of life in oligodontia with or without ectodermal dysplasia

Oligodontia (congenital lack of six or more teeth, except wisdom teeth) is a frequent finding in different forms of ectodermal dyplasias (EDs).

EDs include pathological changes in ectodermal tissues like hair, skin, nails, and sweat glands. Permanent teeth may be missing or have a pointed shape, which can affect appearance and oral function.

Research objective

The goal of the study is to examine how oligodontia/ED and related oral treatment affect oral and mental health and quality of life.

All patients with oligodonti/ED registered at the TAKO-Centre were invited to participate in a survey, and a selection was then requested to participate in an extended interview and clinical examination focusing on oral findings, treatment/management needs, and quality of life

Project members

Janicke Liaaen Jensen, professor, Faculty of Dentistry, UiO

Solfrid Saltnes, PhD student, Faculty of Dentistry, UiO

Amy Geirdal, professor, Oslo and Akershus College of applied sciences, Oslo

Hilde Nordgarden, Head of Department, TAKO-centre, Oslo

Rønnaug Sæves, consultant, TAKO-centre, Oslo

From left: Amy Geirdal, Solfrid Sørgjerd Saltnes, Janicke Liaaen Jensen and Hilde Nordgarden. Photo: Brynhild Foshaug, TAKO-centre.
Published Jan. 11, 2017 10:55 AM